看護総合科学研究会誌 = Journal of comprehensive nursing research;vol. 4 no. 3

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Informed Consent at the Time of Childhood of IDDM Patients

Sato, Yoko;Yoshimura, Sadako;Morishita, Setsuko

Permalink : http://hdl.handle.net/2115/38328
JaLCDOI : 10.14943/36811
KEYWORDS : Informed Consent;Care for IDDM Patient;Child Nursing

Abstract

In the field of pediatric medical care in our country, it has never been clear what was explained by medical employees to children and how the children accepted it. On this survey, interviews were carried out with nine male and female patients (from age 14 to 35) who fell ill with IDDM(Insulin-Dependent Diabetes Mellitus) in their childhood (younger than the age of 15) and who have come to hospital regularly. Questions were focused on these patients' memories of how they were informed of their conditions in their childhood, and what they should do to deal with it, to research how informed consent was conducted and how they recognized it in their earlier years. The results of this study were as follows: 1. Informed consent concerning the name of the disease, the condition of the disease, and treatment had never been conducted for children themselves when they fell ill with IDDM. 2. Life managements for IDDM patients, such as blood sugar measurement, insulin injections, urine sugar analysis, and diet cures, have been explained and taught since their younger ages whenever they fell ill with the disease. 3. Now as adults, recalling informed consent in their childhood, they all recognized the need of explanation to children themselves. 4. Their requests to medical employees in case of informed consent all concerned having suitable strategies of explanations of the disease and explanations of methods to deal with the disease in day-to-day living, for each according to personal need, in regard to factors such as age which would affect their ability to understand.

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