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Hokkaido University Collection of Scholarly and Academic Papers >
Graduate School of Health Sciences / Faculty of Health Sciences >
Peer-reviewed Journal Articles, etc >
Mothers' Experiences of Care Coordination for Children with Disabilities : A Qualitative Study
| Title: | Mothers' Experiences of Care Coordination for Children with Disabilities : A Qualitative Study |
| Authors: | Matsuzawa, Akemi Browse this author →KAKEN DB | | Shiroki, Yuko Browse this author |
| Keywords: | children with disability | | mother | | primary caregiver | | family | | care coordination |
| Issue Date: | 4-Jun-2022 |
| Publisher: | MDPI |
| Journal Title: | Children |
| Volume: | 9 |
| Issue: | 6 |
| Start Page: | 835 |
| Publisher DOI: | 10.3390/children9060835 |
| PMID: | 35740772 |
| Abstract: | Few studies have investigated the care coordination for children with disabilities and their families in Japan. Care coordination enhances the quality of care for these children and their families. This study explores mothers' experiences of coordinated care provided to their children with disabilities and their families. We used a qualitative descriptive approach, conducting semi-structured interviews with 11 Japanese mothers/primary caregivers of children with disabilities to describe their experiences. Four main themes were identified: shared decision-making with key workers, receiving an assessment of the entire family, timely access to coordinated health care services, and a reduced psychological burden and empowerment of mothers. Our findings suggest that care coordination has multiple beneficial effects on children with disabilities and their families, including improving the outcomes. Further research should examine how high-quality care coordination can be provided for such children and their families. |
| Type: | article |
| URI: | http://hdl.handle.net/2115/86461 |
| Appears in Collections: | 保健科学院・保健科学研究院 (Graduate School of Health Sciences / Faculty of Health Sciences) > 雑誌発表論文等 (Peer-reviewed Journal Articles, etc)
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