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Peer group-based online intervention program to empower families raising children with disabilities : protocol for a feasibility study using non-randomized waitlist-controlled trial

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Title: Peer group-based online intervention program to empower families raising children with disabilities : protocol for a feasibility study using non-randomized waitlist-controlled trial
Authors: Matsuzawa, Akemi Browse this author →KAKEN DB
Wakimizu, Rie Browse this author →KAKEN DB
Sato, Iori Browse this author →KAKEN DB
Fujioka, Hiroshi Browse this author
Nishigaki, Kaori Browse this author →KAKEN DB
Suzuki, Seigo Browse this author
Iwata, Naoko Browse this author
Keywords: Disabled children
Family
Family empowerment
Caregiver burden
Health care service
QOL
Peer group
Online program
Non-randomized waitlist-controlled trial
Issue Date: 2-Nov-2022
Publisher: BioMed Central
Journal Title: Pilot and Feasibility Studies
Volume: 8
Issue: 1
Start Page: 233
Publisher DOI: 10.1186/s40814-022-01190-1
PMID: 36324142
Abstract: Background Families raising children with disabilities assume risks to their health and lives. Therefore, it is necessary to support these families to improve family empowerment, which is the ability of these families to control their own lives and to promote the collaborative raising of children with disabilities. This is the first online intervention program focusing on the empowerment of families raising children with disabilities who live at home in Japan. Method The program consists of four online peer-based group sessions. Moreover, the families engage in several activities in stages wherein they discover their own issues, find measures to resolve them, and take action, while visualizing interfamily relationships, including social resources, and the status of their family life, with facilitators and other peer members. This study is a non-randomized, waitlist-controlled trial. It compares the results of the intervention group (early group) and the waitlist-controlled group (delayed group). The participants are allocated to the early or delayed group in the order of their applications. The main outcome is family empowerment. Other outcomes are the caregiver burden, self-reported capability to use social resources, self-compassion, and the quality of life (QOL) of primary caregivers. The timeline of the online outcome evaluation is as follows: the initial evaluation (Time 1 [T1]) is conducted before the start of the first early group program, and post-intervention evaluation (Time 2 [T2]) is conducted immediately (within 1 week) after the early group completes all four sessions (4 weeks) of the program. Follow-up evaluation (Time 3 [T3]) is conducted 4 weeks after the post-intervention evaluation. This timing is the same in the delayed group, but the delayed group will attend the program after a 4-week waiting period, compared to the early group. Discussion The intention is to evaluate whether the provision of the program developed in this study and the evaluation test design are feasible and to verify the efficacy of this program.
Type: article
URI: http://hdl.handle.net/2115/87413
Appears in Collections:保健科学院・保健科学研究院 (Graduate School of Health Sciences / Faculty of Health Sciences) > 雑誌発表論文等 (Peer-reviewed Journal Articles, etc)

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